Month: December 2015

Medical Data Access event report

BSNL and the RSG-Switzerland co-organized in the biohacker space Hackuarium an open discussion about the risks, challenges and opportunities of medical data sharing.
Approximately 50 people attended the round table to discuss about different aspects related to Medical data access. And we were honoured to host as invited speakers:
– Jacques Beckman (Head of Clinical Bioinformatics, SIB),
– Christine Currat (Executive director of the Swiss biobanking platform),
– Manolis Dermitzakis (Professor of Genetics at the Department of Genetic Medicine, UNIGE) and
– Jeanne-Pascale Simon (Lawyer at the Unit of Legal Affairs, CHUV).
At the beginning, Jacques and Manolis told us about their view of this complex question, and exposed some of the current limitations and the link with their own research. They envisioned the situation that we will face in the future as patients, scientist or citizen.
Then, Jeanne-Pascale and Christine described the current status of the law  and how hospitals and more…

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